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Sharing what worked for me/gave my life back
I wanted to share what has worked for me to battle this disease since I was diagnosed in 2017. I know many of you are discouraged, so I hope it can be helpful. Before I was treated, the fatigue and pain was so extreme, I never had the energy to do anything. I could barely even walk. Now, I feel 90-95% functional/normal most days.
DISCLAIMER: This treatment plan is simply what has worked for me and may not for you.
- Gabapentin before bed (started at 300 mg daily; now down to 100mg daily once my symptoms improved). This primarily helps me sleep, which is key to combatting this disease.
- Cyclobenzaprine before bed (started at 20 mg, then 10, now at 5mg daily). This also helps me sleep and STAY asleep while combatting muscle pain.
- I see a chiropractic masseuse once a week. If I don’t go weekly, I definitely start to flare up more. It’s not just adjustments but actually working the soft tissue. Sessions are painful but the good kind of pain, if you know what I mean.
- Heating pads (usually use daily, whether it’s on my back or whole body using a heated blanket)
- TENS machine on my shoulders primarily (for when I have flares or more tension. I don’t use daily unless I need to)
- Magnesium supplement daily and magnesium body wash by LifeFlo
- Natural Calm magnesium drink before bed (daily or when you feel more anxious/stressed)
- perhaps the most important, I got a puppy (Pomeranian) 2 years ago. She forced me to become more active and fight the pain. She also is my comfort dog. Highly recommend if you are able to have a therapy dog. It helped me lose weight too, putting less pressure on my body.
- daily exercise, even if it’s just walking or doing chores around the house. I can’t manage it every day but try to as much as I can. I’ve heard that Tai Chi can help a lot - haven’t had a chance to try it.
Hope this can help you!!
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